Prayer Request for my 3 yr old Sydney...

[Ttulipss]

In September we'll be seeing my 3 yr old's neurologists to go over blood tests in regard to her metabolism. They think she may have a deficiency - if they find one, the results could be ones I really don't want to think about! This all started when she was 9 mos. and refused to put any weight on her legs. We were referred to a pediatric neurologist. To make a long story short, we are on our 3rd neur. and are very pleased with him! He's the first one that actually wants to find out what is causing all of my daughter's problems. She's made much progress over the last year. She didn't took her first step at about 18 mos. but never actually walked until 21 mos. Even then, she remained wobbly and walked with her feet apart quite a bit (a wide gait), but now at 3-1/2 walks, runs, jumps, etc. but has a lot of balance and vision issues. Anyway, we went through another battery of bloodwork in June and will be getting those results in September......after a fight with the insurance & neuro. office - I live in the wonderful world of HMO's and we had the pre-auth, which didn't expire until 8/22, but the neuro. was booking into Sept. so they refused to make me an appointment (ins. will only write a pre-auth for 30-45 days out while neuro is scheduling 60-90 days out).....anyway, after I got as many people involved in this as possible, including the Dept. of Managed Healthcare, we finally got the appt. That is a situation that I could write pages on alone! This is all scary and frustrating enough without these hassles!

And now, on top of all this, trying to be a normal kid and doing what her cousin was yesterday, she fell and broke her clavicle bone. My MIL watches my girls and their cousin twice a week and Sydney and her cousin got a little wild, threw the cushions off the couch and started to jump from the couch onto the cushions. She jumped, but landed wrong and melted down from there. We didn't really know how much was pain and how much was 'melt down' as they had a busy active morning at my MIL's and it was nap time, but I could tell there was legitimate pain. I thought maybe she pulled a muscle, so I took her home and gave her some Children's Motrin and let her nap. She had a difficult time and as I watched her I could tell how legitimate the pain was so I called the pediatrician. They said to take her to urgent care and let them x-ray. My dd flipped after hearing she was going to the doctor - she's at the doctorphobic stage. So it was quite a fight with a lot of screaming and tears, but after 3-1/2 hours it was confirmed - she broke a bone!

I'm on the west coast so as soon as 9:00 am rolls around I need to call the orthopedic surgeons office to get her in to see if they can treat her. It's going to be another fight and in the meantime she can't sleep, play, etc. and is really having a hard time.

So I am asking for your prayer requests and well wishes for Sydney:
1) The Lord intervenes and the blood tests come back with no deficiency
2) That Sydney can have the strength to get through her treatment and the time that follows for her shoulder to heal.

Thank you from a mother who loves her children more than anything and only wants the best for them, but also that the Lord's will be done!

Suzanne

[snooze14]

Suzanne...

ooouuch! I am so sorry to hear about your baby's painful injury and all the problems she has had. I am well aware of neurologists. We went through several too before finding one that was competent to deal with my son.

I will be thinking and praying for you both. Gentle hugs to Syndey.
{Hugs}

[mayfly]

Poor little peanut. I just prayed for her. Please, please post back when you learn anything. She's gonna be ok, the Lords hand is on her. She sounds like a perky little firecracker to me

God bless

[Ttulipss]

Thank you both for your support! I know there are other requests for much more serious needs, but just knowing what these tests can lead to is really scary and she could use all the prayers she can get!

As for her shoulder, we saw the orthopaedic surgeon today and they said there really isn't anything they could do. For a break it couldn't be in a better spot - it's not on a growth plate and the break is in the middle of the bone and should only take 3 weeks to heal, but she won't be "comfortable" pain-wise for a good 2 weeks! No running, no jumping, no wild play, in other words "no normal kid stuff." Try telling that to a 3 yr old! She is in great spirits otherwise - does not seem to be a constant pain, just very very sensitive.

I'll post an update when we know more in regard to the blood test. Again, a heartfelt thank you for your support!

[mayfly]

I am so glad about the bone. Thats funny that it is not holding her back AT all.

Any time you have to get a test it is really scary. I can tell from your posts how precious your children are to you. God loves them so so soSSO much more, can we ever know? But there is a verse in the bible that prays that we will know the height, depth of Gods love for us. Its huge. I am just praying the test results will come through ok. God has plans for her life!

[jen6889]

Ttulipss - I will keep your family and especially Sydney in our prayers. Hoping all goes well with the testing and they can figure out what is causing the troubles.

[jsalba]

You've got it.. in my thoughts BIG time... keep thinking good thoughts.

[hannahsmom]

good luck w. the doc. paula.

[Ttulipss]

Thanks everyone! It always helps to have those extra thoughts and prayers! I know there are much more serious situations on this board for prayer requests and just want to let everyone know that we really appreciate the support! Illl be sure to post an update when we get the blood results.

As for my little sunshine's shoulder......she's in such good spirits that she forgets and tries to play as normal and in no time she's on the floor screaming.....it's very heart wrenching! It really hurts to see your little one in such pain! But as soon as the pain subsides she's off again! It doesn't help when her little sister doesn't understand and wants to play or gets angry and body slams her (my 2yr old "little GLOW girl" is a brute.) All in all, we are surviving!

Thanks again, all!!

[jen6889]

Ttullipss, How's Sydney doing? Her shoulder feeling any better? She is still in my thoughts and prayers!

[Ttulipss]

Hey Jen, you beat me to it.....she actually has a follow up appointment today. I'm sure we'll get a good report as she doesn't cry when she falls, she's using her left arm much more, and I'm actually able to put clothes on that go over her head. Her range of motion is not all back yet, but much much better!

[Vc1612]

I just saw this. I keep forgetting there is a separate forum. I pray everything went well at the doctors and that everything goes well in September. I will be keeping her in my thoughts and prayers.

[Ttulipss]

Thanks VC. I appreciate yours and everyone elses warm fuzzies! Sydney is really a special girl! It's pretty amazing, though, she didn't walk until about 21 months, but she is so smart! I've seen first hand what they say about babies....when they're not doing one thing, they're doing another. This little girl took advantage of the situation that she was very late in her "mobility" and took off in the brain development area. At 2 they told me her language and vocab skills were that of a 3+ year old. Unfortunately, while she skipped babbling sentences, other kids much younger were dancing circles around her.

I'm so thankful though, that she doesn't know anything is "wrong." She wants to do and thinks she can do EVERYTHING other kids are doing which is GREAT, except it gets her in situations like that of her shoulder. The hardest thing about being a parent is when your child is hurting.....I've never felt pain like that before I had my kids.

I will post in an update on her bloodwork as soon as we get the results......I take it as a good sign that the pediatrician has not contacted us.....but I think I should (and will today) call his office just to make sure he's reviewed the results. I imagine he would call us if he saw something that needed to be addressed immediately, but I guess, too, there may be something there that he doesn't have the "expertise" to recognize in the first place....that's why we're seeing a pediatric neurologist, right?

Anyway, you have all been so wonderful and I thank the Lord to have this board to post my need of prayer for my baby (oops ~ my big girl - she's quick to correct me)! We have so much support already from our friends, family, and church family, but how awesome it is to have this group of people that are screen names and posts that I'm slowly getting to "know" that are just so supportive and willing to include is in their prayers along with their own many needs! Words cannot thank you enough!

[mayfly]

(((((((Ttulipss)))))

[Airslady]

Dear Lord I come to you in Prayer that not only will you keep this mothers spirits up and courage strong that you will lay your hands upon Sydney to heal her body Dear Lord to keep her blood in the path that it should be Lord that there be no defeciencys Lord and that Sydney will become a prosperious child in your name in Jesus name I pray Amen
Please keep us posted ttulipss
heres for Sydney(((((Sydney)))))