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  #1 (permalink)  
Old 08-16-2002, 01:35 PM
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Unhappy My Nine year old daughter just diagnosed with diabetes type 1, any good resources?

My beautiful nine year old was just diagnosed with type 1 diabetes. She has chronic ITP (low platelets) since age two. I am trying to be up about this but its a huge blow since she has been so healthy, just found out doing routine tests. She is so athletic and I dont want to change too much but with finger sticks and insulin injections forthcoming I anticipate a long road. We will be talking to a specialist tonight. Just wanted to vent and see if anyone has any really good info. Thanks!

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Old 08-16-2002, 02:22 PM
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So sorry to hear of this...my thoughts are with you all...

I would suggest checking out [Only registered and activated users can see links. Either login above or Register Now] . It's is by far one of the best sites for medical info.

Good luck
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Old 08-16-2002, 05:24 PM
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I've been doing a lot of reading on gestational diabetes. The best site I've found so far is the NIH site....National Institutes of Health.

I went to www.google.com and typed in gestational diabetes and the site was one of them that came up.

You could type in Diabetes type 1 child and see what comes up.

Good luck.
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Old 08-16-2002, 06:18 PM
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I don't know about any great resources online but I would also recommend seeing if your local hospital has a diabetic group. We have one here & it's a great resource as there is a nutritionist & diabetic counselor available weekly to answer questions. I was born with juvenile diabetes (I was diagnosed even before my parents took me home from the hospital) & the one thing you don't want to do is discourage your daughter from remaining a happy, athletic individual. Exercise will actually help her sugars remain at a more normal level and if she is otherwise feeling healthy, then you're probably doing exactly what is right for her. Don't let the doctors browbeat you - insist upon talking to a nutritionist & endocrinologist as well. I know some HMOs frown upon you seeing specialists but it's well worth it to get into good habits now rather than trying to break bad ones later on. And, about the finger sticks - try the newer monitors that allow you to prick the arm instead. I switched last year and they are SOOOO much better!

I also have a son who is on a diabetic diet, so I know that meal planning can be a real challenge. If you would like some meal ideas with exchanges, let me know.
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Old 08-16-2002, 07:07 PM
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There is a site you can ask questions on. Some of the people there have children with diabetes, and might be able to share a variety of knowledge that they got from their doctors: [Only registered and activated users can see links. Either login above or Register Now]
Best of luck on this.
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Old 08-16-2002, 07:50 PM
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Diabetes

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This is the American Diabetes Association web-site. They even give information local to where you live. Hope it helps.
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Old 08-18-2002, 01:24 AM
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Thank you for your ideas

I appreciate all of you! We have just seen an endocrinologist, will be seeing a nutritionist next week. She was diagnosed very early on so that was I good thing. I will check on all of these!
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Old 09-29-2002, 10:25 PM
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Hi beautybar, I just posted a FREE Diabetes I.D. necklace post.
(SASE) and when I did the search to see if it was already posted,
I saw your post, along with some other free info/stuff for
Diabetes. Not sure if you have already found them, yourself,
but thought that might be helpful for you & your Dear Daughter.
So I've gathered them all here for you.
Best wishes to you & daughter,~ Chelle


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[Only registered and activated users can see links. Either login above or Register Now]

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[Only registered and activated users can see links. Either login above or Register Now]

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[Only registered and activated users can see links. Either login above or Register Now]

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[Only registered and activated users can see links. Either login above or Register Now]


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Sponsored by: DiabeticDrugstore.com / Reference

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Click on the link under "Great Idea...Read All About It" in the
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12 informational booklets, a small display box to hold them, a
bookmark, and refrigerator magnet.
[Only registered and activated users can see links. Either login above or Register Now]

*Diabetes
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Old 09-30-2002, 11:21 PM
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First have you talked with JDA yet?They can help alot, they might be able to pair her up with a child her age who has lived longer with it and can talk with her.

another website for you to look at

[Only registered and activated users can see links. Either login above or Register Now]

hugs


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Old 10-01-2002, 11:50 AM
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My favorite uncle (he's only 11 years older than me) was diagnosed when he was 10. he lleads a healthy, happy, athletic normal life. he was always a volleyball and sailing star.

he just had his first baby girl.

he also participates in a study at a hospital here in CT (i forgot which on) helping find a cure.

he's proof that diabetes lets you still live a normal life. tell your DD to hang in there and dont let her get down. she'll do great.!

if you would like to talk to someone who's been there, i can give you the email address of my grandma and/or my uncle. my grandma was a nurse her whole life and obviously helped my uncle every step of the way. she also talks to people who's children have been diagnosed if they need to talk. i think she could be a valuable source to you and she wouldnt mind at all. she also checks her email daily. my uncle could give you some first hand experiences of dealing with diabetes as a child. if you would like to contact either of them, email me at [Only registered and activated users can see links. Either login above or Register Now] and i will give you their email addresses.

god bless your daughter in these trying times.



(i also went to highschool with a girl who had severe diabetes since she was 7. she was the best female swimmer in our school and went on to win tons of competitions.


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